Does Anyone Else Have Family Members Who Don't Fully Understand Your Chronic Pain?
Feels like no one understands my chronic pain...I do not speak of it nor do I complain about, learned early on no one wants to talk about it or sympathy. Only ones that do are experiencing it… read more
Who Has Supported You The Most Throughout Your Battle With Your Neuropathy?
Do You Feel That People Think That Your Pain Is All In Your Head?
I have a friend who thinks that I am putting it on, when I say that I am in pain, as she just says, well you look good, are you sure you have pain, this really hurts me inside. Do any of you have friends or family who think that the pain is in your head?
I’m not sure where this comment fits in this discussion about people thinking pain is in your head, but truly what other people think of you is really none of your business. My daughter said that to… read more
What Did You Join Chronic Pain Team?
Reasons for join the site
Was it for making friends as you are house bond,
Cuz you want to make a difference by share your account of problems you have or had.
You need advice as you have family members with pain and you don't know what to do about it or don't believe them!
You want to know how much pain they are really in, how can you tell!! ( Ask Them)
The reason I joined the pain team is for information. And I have learned that someone has experience some of the things you are going though.
Do You Feel Like You Are Just In The Way?
Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.
Yep. I’m of no use to anyone so out of sight, out of mind. They forget that we gave our whole lives to them.
How Does Your Spouse React To Your Chronic Pain & Does Your Chronic Pain Affect Your Relationship?
For those who are married or in a committed relationship how does your spouse react to your chronic pain& handle it? For singles how does your chronic pain affect your dating life?
Same as above...but 8 grandkids! This is very frustrating as I want to be in their life as much as possible. Lots of faking it! :) But I must be doing a good job with the faking part, as they don't… read more
Anyone Have A Family And/or Friends Who Understand Why You Continue To Cancel Plans/why You Have To Leave Early/why You Are Not Smiling ?
After about say 20 years of the same answers to family and friends, sorry i cannot stay up that late. or my pain hurts too much for me to stay here, I can't sit on hard surfaces or any other reasons we have. The Friends tend to dwindle away, and the Family say they understand but you can see it on their faces oh no again with "pain" I put it to you that if anyone who is not going through this 24/7 365 then they do NOT understand at all. You can reference the time they were in the… read more
I completely understand. I have suffered for tentyyears gradually getting worse. It cost me my first marriage because sure he just could not cope with me and I thought it fairer to him to let him go… read more
How Do You Deal With People Staring At You And Giving You Advice All The Time?
I am 21 years old and I have been suffering from chronic back pain for the past four years. I has gotten worse these past 4 months and it's started affecting my legs as well so I use a walking stick to get around whenever I need to leave the house. I have noticed that whenever i walk into a room people would literally stop whatever they're doing and they'd just stare at me. The staring gets even worse when children start pointing at me. This has really affected my self esteem in a great way and… read more
Yes some people can be annoyig.i dont realy get to many trying to advise me.but they will stare or act real leery because sometimes i get the shakes real baf from nerves and muscle spasms .some times… read more
How Do You Help Young Children Understand Your Condition So That They Understand Not To Be Rough With You?
I have a two year old who like to jump on and climb all over me and it's getting to be too much. She doesn't understand that mommy hurts and even punishing her feels wrong but I have to do it because she isn't getting it. How do you help toddlers and young children understand that you are in pain and they have to be careful with their affection?
Tell them to be careful you have a boo boo when you see them near you. I've had 14 surgeries and yes it's been difficult but I didn't die yet. Keep loving on those babies 💕
Anybody Hear Of Or Tried Wild Lettuce Leaf For Pain?
I have heard of wild lettuce being used by native american shamans for pain relief has anyone heard of it or tried it? I am not advocating it all i know is that it is legal and it is supposed to help pain but it may be the new snake oil that predatory people are preying on the desperate to get pain relief. Any feedback?
I've dried some but looking for a guinea pig...It can be made into tea,tinture,smoked and poultus(they say that can irritate the skin).It says if you have prostate or glaucoma issues not to use it.It… read more