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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anybody On Here Been Diagnosed With NDPH (new Onset Daily Persistent Headache)?

A MyChronicPainTeam Member asked a question 💭
Narvon, PA

Web forums and medical articles on this relatively recently defined headache syndrome are filled with stories of headache that was triggered, usually by an infection. Most know the exact date it started, and most just had EBV (mono), or were later diagnosed with Lyme. I have both, but they're not new. There has never been any research on it. There is no proven effective treatment, since the mechanism is unknown.I believe that it is inflammation from an overactive immune response. Occassionally… read more

July 2, 2018
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A MyChronicPainTeam Member

DON'T DO IT!!! Of all places, the cervical is most dangerous, because the area they need to inject into is very small. Complications are more common. There have even been deaths. My injection was thoracic (T8). The medication used for these injections is not FDA approved for this use, and not as safe as the docs think it is. If you even get relief, it's short lived. And you risk life long disability and severe pain. Just not worth it!

July 2, 2018
A MyChronicPainTeam Member

Go for the pain pump. Surgery causes problems

July 3, 2018
A MyChronicPainTeam Member

Just afraid of having a pain pump put in. Dont know why they dont remove the Bone Spurs on my Cervical spine because the tingling in my head

July 3, 2018
A MyChronicPainTeam Member

My pain management but shots of Botox and nerve blocks in back my head I lost horrible migraine

July 21, 2018
A MyChronicPainTeam Member

You do have to be careful though I was one of the few that had a bad reaction and it blew my head up and my whole face swelled had to go to ER bless anyone that it works on.

July 16, 2018

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