Hi, @A MyChronicPainTeam Member I suffer every single night to sleep like you do. Some nights I cry, some I sit up, lay down, pillow between knee's. Flip from side to side... For hours. I sleep every few nights some weeks. I'm so used to NO sleep. I sleep better on a couch as I'm not laying flat.

My pain increases when I'm sedentary. I used to stay in bed all day, my pain was so bad.

I totally agree with @A MyChronicPainTeam Member you need to get out of bed. Go walk around your block. If you can only make it to driveway.. congrats!! You got out of bed!! If you can only make it up & down your hallway, do that. Use dumbbells while watching that tv. Listen to meditation or Ted talks. I have been in bed since Feb 2013.

Feb of 2019 I decided no one can help me but ME! I push my butt to get out of bed daily! And some days, I can barely move.

I go to massage therapy & chiropractic care every few weeks. I move better from both of them. I can call if I'm in screaming pain & they will take me that day.

I was determined to stop taking 21 medicines including LYRCA TID & OXCY. Hydromorphone. You name something, I've tried it. I now take Topiramax BID & supposed to take depression meds but haven't been in few months due to CBD/THC oils. Don't feel I need them.

Kudo's @A MyChronicPainTeam Member for working in Canada to legalize that great little plant.

Some days I cry.. most days I'm laughing about something! Most days don't end with doing both!! I push myself & tell myself that everything is Physio!! I now cut my grass again, weed gardens, do my laundry, cook. I haven't done these things in 3 years. I spent 2 years finding & signing up for as much physical therapy as I could get. There's days I get to grocery store & I can only pick up 3 items. That's all I get. But I push myself to walk, get out of my house, get out of my bed. I had no life.

There's some days I'm so frustrated with my left hand & leg pain I want to give up again. I write in journal beside my pillow.

Chronic pain sucks. I try to no longer focus on my pain. I will not let it win. (Or telling my story) I had to learn to let go of my "other self" before massive brain bleed & stroke. Counseling!

I am Caren 3.0, Ted in my head is dead & I have a TBI. Nothing I can do. I can be defeated or keep up the good fight. After all.. i'm a brainavm & strokesurvivor. I'm a Survivor.. theres a reason I was given a 2nd chance. I can't waste away in bed.

Normies don't understand why we snap sometimes!! I always tell my friends my pain is like someone poking me constantly, over & over quickly. ( You ask few times to stop & then snap!) Eventually some days due to different stimulation around us it increases the pain or weather. I've been working on being calmer over few years.. long process. I try counting, breathing etc. All techniques learned over past 6 years.

I wish you and everyone else success in this great big journey we call life!

Mentioned Users

A MyChron...

I shall pray for everyone here. I too suffer from lack of sleep due to chronic pain. I do CBD gummies, emu cream, oxycodone. Quite the combination. Oh yeah, Benadryl also. Sit up until I almost fall out of bed and if I lay down and hurt still I sit back up and begin rubbing hips and leg till I think the pain will ease up enough to sleep. Every night. Sometimes I even cry before going to bed because I know that I have to go through with this all over again. Asked God for an Angel one night and I do believe that He sent me one. God bless everyone and take care. Prayers for healing.
Your friend Geri

I take Xanax .Help nerve pain and sleep . I hate taking them but no choice .Had insomnia so bad I was more tired then with fibromyalgia I couldn't function.

I find laying on my heated blanket for my back pain helps & wrapped frozen packs for my leg pain 🌺🌷🌺🌷🌺🌷🌺🌷

If you ever feel like you need to talk to someone about your pain or anything else. You can talk to me, I've been told im a good listener. My friends go threw pain from fibromyalgia and diabetes . I also go threw pain in my legs ,knees , and other areas of my body. I tell.my doctor but they say they can't help, they want to always put anyone on pills that dont work, that's so frustrated . I was a trick for sore muscles , I was told take a rolling pin and roll.it where there is pain. The rolling part will stretch the muscle and calm it down. It works . So sorry for the long message .
If you would like my cell number dont be afraid to ask.
Please take care.
Hugs Gabriella