I have a spinal cord stimulator which helped the nerve pain in my legs, as well as the back pain. However, my nerve pain cause was due to a spinal cord injury. Talk to a pain management doctor to see if that would help you. I still have pain but I have other health issues but the stimulator has really helped the neuropathy.

Well @A MyChronicPainTeam Member l am glad l,am not the only one l have had more than one specialist scratch his head and say we don't know how to treat you or you are an interesting case ect. It drives you mad doesn't it l mean it's hard enough to get a blumming diagnosis without your body having to be wierd as well lol

Mentioned Users

A MyChron...

I am currently taking a 24 hour sustained release formulation of morphine, plus a liquid immediate release morphine which I can titrate up to 10 mg/5 mL. The nice thing is that if I need lower doses of morphine during the day, then I need only reduce the number of mL to 2-3 and I am on a dose of morphine that cuts the pain but I still stay awake. Hopefully, this is temporary because I also have implanted peripheral nerve stimulator and a spinal cord stimulator. Unfortunately the batteries are dead. We need to replace them (which will hopefully be soon) and see if affects my muscle spasms that are due to either the brain damage from dementia, or the peripheral polyneuropathy, or both). We haven't done enough testing yet to figure it all out. I have the type of body that behaves unusually in terms of symptoms and pain referral patterns, that it has driven multiple doctors up the wall, until they diagnose, treat, and the unusual symptoms go away. I deal a lot with ER doctors, due to falls, heart and esophageal problems (sometimes it's hard to tell them apart), and a few other things. What I am tired is their discharging me and telling me everything's "normal" until a couple of days later I get into my electronic health record and find other problems like anemia, adenopathy in in gut (I don't even know who usually treats that!) and the latest and greatest, a granuloma (usually a precursor to cancer) in the upper lobe of my right lung (and I used to smoke!). I'm waiting to hear back from my lung doctor to see what he wants to do (like a biopsy to start!) I'm praying it's just something called sarcoidosis, an autoimmune disease that's pretty treatable (my sister had it, was never symptomatic, and is in remission!) The dementia dx was the final straw!

I also have neuropathy in my feet and legs Julie, and doctor and neurosurgeon have decided it is caused by Lipoedema in my legs. [different from Lymphoedema, Lipoedema is a collection of lymph and fatty cells in the tissue of the legs. This causes swelling in ankles and around the knees] I experience severe pain in my feet, as well as pins and needles. I am currently on Gabapentin caps, 900mg, and this does help to reduce the pain. I could go up to a higher dose, but I don't want to, as they may affect my memory and thought processes. Hope you are able to find help soon. Wendy.

I "climbed" the WHO pain ladder as recommended by my neurologist for my chemo induced peripheral neuropathy and found that only Percocet worked for me...45mg/day. Not pain free but at least I can sleep better. We pain patients are being persecuted due to a hysteria created by PROP and one Dr. Kolodny...go ahead...look it up for yourself. It's unconscionable!