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What Are People's Experiences With Spinal Cord Stimulators? I'm Looking At Possibly Having A Trial Done For A Week. Thank You For Any Input.

A MyChronicPainTeam Member asked a question 💭
Schuylerville, NY
February 3
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A MyChronicPainTeam Member

FYI: The SCS does NOT reduce the horrific jolts, burning, stabbing, and off the charts (10+) of deep bone/nerve pain in middle of night that goes hand and hand with RSD/CRPS. These middle of the night attacks feel like someone is trying to break my leg. There are no words for this pain; only screams and tears.

February 10
A MyChronicPainTeam Member

I have RSD/CRPS since bunion surgery 12/17. Suffered with tons of pain meds for a year as i did not want anything implanted in my body. My neurologist would bring it up, and after an 11 day flare up; i conceded to a SCS trial. i was told the SCS would relieve 50% of my pain which hovered around 8-10 daily with pain meds! i was hoping to get off all pain meds with SCS implant. I was able to reduce my pain meds; however, still need them with the SCS. I believe the SCS does relieve 50% of my pain. I had the ACS implanted December 2018. I will need to have the battery pack replaced in 2-4 more years. Not looking forward to that surgery as the surgeon talked me it was difficult putting into
my body just above my right back hip area. Overall, the reduction of pin meds was worth hai g the SCS implant. i have the SCS by Abbott. Abbott rep reprograms it every 3-6 months. She does a great job and i can always be assured of less pain after she reprograms my SCS. i hope this is helpful. i have a very high pain tolerance level.

February 10
A MyChronicPainTeam Member

Do your research! I have only heard the negative things - and there are many! - about the units. Leads can migrate, you can experience small shocks, and they may just not work for your kind of pain. I read all that and decided on a pain pump instead. But, I urge you to ask lots of questions, and best of luck to you ❤️

February 10
A MyChronicPainTeam Member

Yes Brenda I can’t sleep so well as I feel as though my legs are breaking it’s awful jolts we get and all the rest of fire is unbelievabley pain off the charts 🤗🤗

February 10
A MyChronicPainTeam Member

Hi Brenda’s . Yes that’s great to hear that the scs were helpful to you. Your so lucky of less pain 🤗

February 10

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