@A MyChronicPainTeam Member
I should have mentioned to everyone that when I do Meditation at home, I always do it lying down and usually when I get into bed each night. First and foremost it's necessary to be comfortable. If I go to sleep in the middle of it - then it has done it's job, don't you think?

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A MyChron...

Many times I have had to lay down and work on mindful breathing and meditation from my bed, as this is one of the few places I can find the most comfortable positions. Remembering the we are not the pain, it is not our definition, we are experiencing the pain can lead to a gentler relationship with it. This is not to say that the pain goes away but it can be held more compassionately and in that experienced with a bit less intensity. As with all things the tighter we hold on the stronger they respond.

I accept I will always have pain, but I have a right to function as much as everyone else too. I won't b going quietly into that dark knight.

@A MyChronicPainTeam Member, my heart goes out to you. I've been there recently, I cried bucket-loads when all other avenues of treatment fell through. I've tried so hard to get some semblance of a life after this medical condition started 3 yrs ago - my pain is constant and severe nerve root damage (L4-S1 lumbar radiculopathy), only to be told the same thing. Now that the doctors have decided that I have "chronic pain" there's been a big shift in attitude from them so they now act towards me as though it's all in my head and have been told that I can't live on pain killers for the rest of my life. Without them, I can't walk. It's earth-shattering for me as I expect it was for you. I've done this journey very much alone except for the good people who are a part of this support group. All helpful and meaningful advice I have received from here also.

I found that "loss" of the spinal cord stimulator (SCS) plummeted me into great despair and depression. I've had suicidal thoughts for 6-7 months now since they took out away the stim trial and took away hope. I came very close to ending it all at the end of October when I heard that funding had been withdrawn for the SCS. Finally I am getting help from mental health specialists and they have been appalled by how I've been treated. I'm taking life one day at a time now, and that's my advice to you. Hugs, Kathryn.

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A MyChron...

Once u just accept what doctors tell u it immediately puts a fence around you and ur confined within a smaller space. I strongly believe in not taking everything they say as gospel and listening to what my body tells me and it's been my way for a long time now. If I'd just taken what my GP said I honestly believe I wouldn't be as well and fit as I am today. It's a case of doing as much as possible on good days and relaxing more on bad days. THIS IS MY ETHOS!