I’m so sorry! 🤗 All you can do right now is wait till they give you a diagnosis. In the meantime, be positive - you don’t for certain what is wrong, but YOU do know your symptoms. Be sure to take a natural anti inflammatory supplement that contains Tumeric, ask pharmacist for recommendation. Also take some magnesium (citrate is like Milk of Magnesia) glutamates are easier on you stomach, it helps with inflammation as well. If heat helps, take baths with Epsom Salts. Some have oils added, like lavender, which help you to relax. Be sure to drink half of your weight in oz. so if you weigh 150 lbs, be sure to drink 75 ounces of water. Get as much rest & sleep as you can. Eat a nutritious diet, and if possible keep moving. Even if it hurts, move or lay in bed & do stretches & gentle exercise. Practice relaxation techniques, learn how to meditate & investigates mindfulness. I know this is not the answer you are looking for right now, but these things will absolutely help you to better handle the pain. I’ve been doing these for several years & though it sometimes doesn’t seem to work, they boost your pain threshold.
When do you doctor again? I’ll be praying for you. I also suggest you start a diary of your symptoms, explaining how they effect your daily life & what you do to try to relieve the pain, how bad the pain is, and what are eating. This will help your doctor understand what you are going through. Write down all your questions for the doctor, or I guarantee you will forget one. If possible, have someone go with you the doctor’s appointment. Another set of ears will help you remember what was said, instead of hearing one word, freaking out & not hearing what he/she recommends. Take a deep breath & let it all out slowly. Repeat ten times.

Keeping a journal about your pain is a must. Take it to the doctor with you. Write down any questions you have, even questions you think might be dumb.
I hope you have a good, supportive family, and good friends.
God bless you sweetie.

Annmarieshannon
Really great advice. Applicable to any unknown possibility of Disease diagnosis. Positivity is so important to all of us. Negativity brings us down and only makes things worse. It’s really hard to be positive when you are in pain or afraid. That’s when families & friends are there to listen & support you & help you work at being positive.

Hey @A MyChronicPainTeam Member!

Having had a rare auto-immune illness I do understand why you are feeling the way that you are. First, take a deep breath and give things a chance to settle if you can. Whether it is auto-immune or connective tissue disease makes it clear that nothing you did or didn't do contributed to where you arr. My original Neurologist made me promise not take anything I found on the internet symptoms, outcomes, or anything illness related until further notice. She explained to me at the time that she and her team were going to do everything possible to get me over the next hurdles and that she only wanted people who could be supportive around me.

Maybe you might understand her and my point this way - When I was pregnant with my first child everybody either had or knew someone who had the absolutely worst pregnancy or labor or delivery. Frankly, I was horrified at some of the stories people told me, and it only made what the future held for me more frightening. A few months later with thew exception of a few tense minutes in delivery I sailed through my pregnancy and delivery. First time out labor was about 9 hours at home and 20 minutes in the hospital ( I wasn't even sure it was labor because there was not much pain!) I had a beautiful and healthy baby girl! 36 hours later I fit into pre-pregnant clothes and was on my way home! If I had been surrounded by positive, supportive, and upbeat information and people, I would have enjoyed my pregnancy much more.

So, surround yourself with people who are there for you in your corner!! Know in advance that the best thing you can do for yourself is to treat yourself well. Great diet, exercise, doctors, nurses, therapists, family and friends surrounding you are your best tools for your battle with any illness.

Once the diagnosis is made a treatment plan will have to be developed, again this is a good time to have a psychologist on your team Developing a treatment plan is not just taking a prescribed medication. It has to do with who will be treating you, how long will each medicine be given a chance, what adjunct therapies will be used, will second opinions be utilized, how can the family make it through the hard financial times, how will another doctor or treatment be sought out, again another endless number of questions.

I have added you to my team if that is okay with you, if not let me know. Keep asking the good questions!!

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A MyChron...

Ask about monthly injections of an imunosuppressant. They help me a bit. You may need to try several to get relief