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Is Anyone With Ehlers-Danlos Syndrome Willing To Talk With Me?
I have suspected EDS and am awaiting official diagnosis, but I am coming to find that I feel extremely alone in this as even my partners don't quite understand what I am dealing with. This has been a wonderful community of caring, understanding people, but I would very much like to connect with people who have been diagnosed with or suspect they may have EDS and perhaps learn more about living with it as even regular chronic pain tricks don't always help.
I know it's been awhile since you posted but I'm willing to talk.
How Do We Handle Trauma With Our Pain Conditions?
How do we ...... deal with traumatic events while being so sick and/or in pain.
8 days ago my significant other died from an abdominal aneurysm, age 52. It took me over 2 days to find out as no one thought to find me. Unfortunately after trying everything and everyone for answers, I googled him. Imagine the instant grief and shock to read his obituary online. I was already so sick and he was finally home from a very long recovery from a broken femur.
How does your body respond to events and… read more
Sorry for your loss there will be a time of grieve after that you can do EMDR treatment you can restore traumas in another part of your brain so that they are not triggerd often .
Wish you strength… read more
Has Anyone Ever Used Illegal Drugs For The Pain?
I thought I added you befòre. I've added you now hope you're ok with that. Take care on your journey with chronic pain
Do You Have A Stimulator ?
Do you have a intern stimulator ?
from witch provider ?
How went the operation ?
How many percent is the pain gone away ?
Witch abilitys did you get back ?
Do you use less meds ?
Yes, i was one of the first to have one over 25 + years ago. Whilst ive had replacement units its been a godsend for me and allows me to have less pain everday than without it.
What Next??
So after years of various pain meds at various strengths my body has decided to react against anything more than paracetamol 🙁. So my GP tells me all they can offer me Graded exercise programme and nothing else.
I’m already fairly active and have lost 2 stone in weight (1 more to go).following a modified diet. I try not to stress about the pain and try hard to keep things normal but sometimes it’s really hard. My son suggested cannabis.
Has anyone got any ideas/suggestions for me please
I've done cannabis for my pain in my head it does work with amounts of CBD and alittle THC but it made me really tired.
I Dont Know What To Do. I Seen A Surgeon A Year Ago And He Said That He Can Only Do Surgery On People That Would Benefit From It
If they wont do surgery. What are my other options?. Im on every medication possible. I really need some answers please
You need to find your own individual balance between activity and inactivity thats the only thing that works. Too much work = too much pain. Not enuf work = too much pain amd stiffness. Aside from… read more
Has Anyone Gotten Pain Relief From Not Drinking Milk?
Hey Barbara. The reason for the weight issues from my maternal side was because they ate horrible food, drank soft drinks and weren’t very physically active. I’m sure there was some undiagnosed… read more
Has Anyone Had A Consultation With A Neuro Psychiatrist?
* How did you feel during your
appointment?
* Was seeing them relevant?
* Have you been offered any further
treatment?
* * * * * * * * * * * * * * * * * * * * * * * * *
My reason for asking is that my GP believes among other situations, experiencing a trauma can be a triggering factor for the onset of the symptoms of fibromyalgia & if this is so, whether I would be a good candidate for further treatment?
I would really appreciate your willingness to share your experience with me.
Thank you. I was needing to hear that. So many of these chat pages are not what they appear.
Has Anyone Had A Drug Testing Issue When They Apply For A Job?
I've thought of going back to work but am certain a positive drug test will not allow me to get the job. I take hydrocodone and zanax xr. Has anyone had this problem when they apply for a job?
Most places will ask about prescriptions, have all info ready. As long as you are not going to operate heavy machinery it Should be ok
Why Do All.drs Now Want To Treat With Injections..I've Been Under Drs Care For Over 13 Years And Never Had Anyone Talk About Injections
I just feel like when this whole opiod crisis came to light drs thought hmmm injections will make us some money..I never needed then and I do not want or need now ..how can I find a dr to understand that. I noticed when I call saying I need pain management they say they only treat with injections..they dont even know what's wrong with me ..no tests have been sent no exam has been done just a phone call.how is this consider good health care
Depends on what kind of injection. for some the pain med in the spine can work wonders, others of us, not so much.
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