Top 10 search results for "i wish i could tell the truth about this illness but i think that a lot of people dont understand" in Q&A. To see all results and access other features, sign up for free.

I have a friend who thinks that I am putting it on, when I say that I am in pain, as she just says, well you look good, are you sure you have pain, this really hurts me inside. Do any of you have friends or family who think that the pain is in your head?

For those who are married or in a committed relationship how does your spouse react to your chronic pain& handle it? For singles how does your chronic pain affect your dating life?

Is it wise to taper off of gabapentin slowly? My prescription is far above the studied dosage, and have experienced some confused thought process...i.e.) losing words, short term memory loss. I've been on it for several years, but my condition has worsened and is better controlled with another med.

I have degenerative disc disease, diabetes, nerve damage, neuropathy, anxiety, depression, and an ongoing undiagnosed condition that my doctor and I are working on. With all that I get to a point of just dealing with people.

For me my typical inclination is joke on something like "well at least I got out of bed" or "I've been better I've been worse" .... But here lies the rub in what is appropriate to say the people that I live with don't want me to mention it at all they don't want me to talk about it they don't want me to say anything about it even if someone says hey how you feeling today I'm expected to respond with fine how are you as if I were just any average person on the planet. How do you handle it when… read more

I happened upon a survey/Questioner from the national pain report. They are fighting back amongst the effects the opioid crisis is having, tying our doctors hands in properly treating us with the medications we need. They collected 1700 questioners along with each patients stories. A few weeks ago their findings and recommendations were brought before the F D A. We are fighting back!!!!! The findings and recommendations can be found in part one and part two of the report. They do have a… read more

I find it difficult to say how i am doing when somebody ask it.I really don't know how to answer do i say " al right " but i am not / or "bad " do i give somebody a short /or long version of my situation , it is diffecult to choose in different situations.Last time i am answering with ; i have difficulties with my disability but i have a lot to be thankfull for ; because i don't want to lie / but i also don't want to open a conversation with a long sad story.

Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.