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Do You Have Support For Spouses Of Chronic Pain Patients?

A MyChronicPainTeam Member asked a question πŸ’­
South Bend, IN

My husband has really bad chronic pain and sometimes it’s hard for me to deal with it. Am I wrong for feeling like this?

August 25, 2019
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A MyChronicPainTeam Member

No your not. When my late husband got really sick it was a struggle for me too. I was an over the road truck driver trying to keep a roof over our heads. I had to get someone to live with us to help out when I wasnt home but that was a disaster..wont go into details. I wont say it gets better because I dont know. But all you can do is not give up and do the best you can.

August 25, 2019
A MyChronicPainTeam Member

The way my husband and I deal with it is with communication. When he's feeling frustrated dealing with my pain issues, I want to know so I can help him, even if it's only giving him a chance to vent. I know my condition has been hard on him, and watching me hurt just kills him. He wants to make it better but can't, and he wants me to be able to take some of his burdens (like the chores) from him, but I can't. Leaves him in a tough position. I guess it also helps that we each have our own rooms, since I rarely sleep, but I'm pretty much bed-ridden anyway. It sounds awful, I know, but it cut down on a lot of his frustration when he didn't have to deal with me moving around and making noise while he's trying to sleep. And this way, too, we're not constantly in each other's space. He can relax in his own space and unwind a bit without having to deal with my issues for a little while. So, yeah, take time to vent and find your own space to relax and take time for you.

October 3, 2019
A MyChronicPainTeam Member

No your not you can have different emotions : lose your patients , be sad because you are empatic, dream about a better life , miss out of things , do all the hard work and always step up , take so much care your exhausted all those things you can expierience and its human.

Sorry i am myself a chronic pain sufferer so this is a small part i can relay.

Compassion for you and al the work you do i wish you strength to carry the burden

Greetings from Holland

πŸŒ·πŸ’“πŸŒ·πŸ’“πŸŒ·πŸ’“πŸŒ·πŸ’“πŸŒ·πŸ’“πŸŒ·

There is no group but maybe you can start one i can remember there is one other lady how is self no sufferer.

August 25, 2019
A MyChronicPainTeam Member

My husband helps alot. There are things I just cant do. He is also still working and has his own chronic pain issues. Weight , back and knees. We now order our groceries and he picks them up. He also cooks and does laundry. I have someone who can clean every other week so we are very fortunate. But he is right on the line with his issues. I absolutely don't know what will happen when he gets worse. People with hip issues. Are there any workarounds. If my stove and counters were lower, maybe. I cant sit on a high stool. Battery wheelchairs or scooters but getting in and out of the car etc and the expense of these. Anyone with a magic or creative solution.......

October 3, 2019
A MyChronicPainTeam Member

I can imagine it's frustrating for both sides. Might not be a bad idea to find a mental health professional so you get the support you need as well.

September 24, 2019

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